2011 Awards
The 2011 joint recipients of the Lifetime Achievement Award are Ruth R. Faden, PhD, MPH, and Tom L.
Beauchamp, PhD.
The work on which Drs. Faden and Beauchamp
have collaborated, as well as their individual
achievements, is considerable and influential.
Their scholarship has led to the development of
public discourse and policy on a host of important
issues in biomedical ethics and health policy, and
PRIM&R is honored to formally recognize their
achievements with its highest award.
Although their joint and individual accomplishments
are too numerous to catalogue
exhaustively, the highlights include A History and
Theory of Informed Consent (Oxford University
Press, 1986), their co-authored work which is still
widely regarded as the most authoritative and
comprehensive canon on informed consent.
Ruth R. Faden, PhD, MPH
Dr. Faden is the Philip Franklin Wagley Professor of
Biomedical Ethics; Director, Johns Hopkins Berman
Institute of Bioethics; Professor, Department of
Health Policy and Management, Johns Hopkins
Bloomberg School of Public Health; and Professor,
Department of Medicine, Johns Hopkins School
of Medicine.
Dr. Faden is the founding director of the Berman
Institute, and has taught what is believed to be the
first public health ethics course in the country. She
is also a senior research scholar at the Kennedy
Institute of Ethics at Georgetown University. She
is a co-founder of the Hinxton Group, a global
community committed to advancing ethical and
policy challenges in stem cell science, and the
Second Wave project, an effort to ensure that
the health interests of pregnant women are fairly
represented in biomedical research and drug and
device policies.
Dr. Faden has served on numerous national
advisory committees and commissions including
the President’s Advisory Committee on Human
Radiation Experiments, which she chaired, and
which produced a comprehensive report of the
experiments conducted by various US federal
government agencies.
Dr. Faden’s current research focuses on
questions of social justice in health policy and
global health, including the national and global
challenges in pandemic influenza planning and response, vaccine policy and funding, health
systems design, and fair access to the benefits of
global investments in biomedical research. She
also works on ethical challenges in biomedical
science and women’s health.
Dr. Faden is the author and editor of many
books and articles on biomedical ethics and
health policy, including Social Justice: The Moral
Foundations of Public Health and Health Policy
(with Madison Powers, Oxford University Press,
2006), AIDS, Women and the Next Generation
(with Madison Powers, Oxford University Press,
1991), and HIV, AIDS and Childbearing: Public Policy,
Private Lives (Ruth Faden and Nancy Kass, eds.,
Oxford University Press, 1996).
Dr. Faden earned graduate degrees from
the University of Chicago and the University
of California, Berkley. She is a member of the
Institute of Medicine, and is a Fellow of both the
Hastings Center and the American Psychological
Association. She was the 2011 recipient of the
American Society for Bioethics and Humanities
Lifetime Achievement Award, and PRIM&R is
pleased to similarly honor her with its Lifetime
Achievement Award.
Tom L. Beauchamp, PhD
Dr. Beauchamp is Professor of Philosophy and
Senior Research Scholar at the Kennedy Institute
of Ethics at Georgetown University. He received
graduate degrees from Yale University and The
Johns Hopkins University, where he received his
PhD in 1970. He then joined the faculty of the
philosophy department at Georgetown University,
and in the mid-1970s, accepted a joint appointment
at the Kennedy Institute. In 1975, he joined the staff
of the National Commission for the Protection of
Human Subjects of Biomedical and Behavioral
Research, where he wrote the bulk of The Belmont
Report (1978).
Dr. Beauchamp’s research interests include the
ethics of human and animal subjects research,
as well as the place of universal principles and
rights in biomedical ethics, methods of bioethics,
Hume, the history of modern philosophy, and
business ethics. He is currently conducting a study,
in collaboration with several other investigators,
including Dr. Faden, which focuses on the
conceptual, moral, and policy dimensions of the
distinction between research and treatment.
Dr. Beauchamp currently holds a National
Science Foundation award to advance work in
animal research ethics, together with a group
of investigators headed by Hope Ferdowsian
at The George Washington University. This
project is centered on an analysis of the concept
of vulnerability to harm, and the creation of
an anatomy of potential harms from research
interventions.
Another of Dr. Beauchamp’s priorities has been
his participation in the development of a program
in pharmaceutical ethics at the Eli Lilly Company.
Lilly has been one of the first pharmaceutical
companies to establish a standing bioethics
committee, and Dr. Beauchamp has been involved
in this initiative from its inception.
Dr. Beauchamp is the author and co-author
of numerous books, including Principles of
Biomedical Ethics (Oxford University Press, 6th
edition, 2008) which has become the standard
book for medical ethics classes all over the world;
The Human Use of Animals (Oxford University
Press, 2nd edition, 2008); and Philosophical Ethics
(McGraw-Hill, 3rd edition, 2001). Many of his articles
were republished in early 2010 under the title
Standing on Principles: Collected Works (Oxford
University Press, 2010). Dr. Beauchamp has edited
and co-edited numerous anthologies, journals, and
books that span a number of distinct disciplines,
including journalism and epidemiology, and he
recently co-edited The Oxford Handbook of
Animal Ethics.
Dr. Beauchamp is a 2011 recipient of the Hastings
Center’s Henry Knowles Beecher Award. He was
also the 2004 recipient of the American Society for
Bioethics and Humanities Lifetime Achievement
Award and the 2003 recipient of the Georgetown
University Career Recognition Award. In 1994
Dr. Beauchamp received the McDonald-Merrill-
Ketcham Memorial Award from the University
of Indiana.
In The Belmont Report, Dr. Beauchamp
articulated the three fundamental ethical
principles: justice, beneficence, and respect for
persons, which have become the worldwide
standard for the conduct of ethical research with
human subjects. These principles are further
reflected and reinforced by the monumental
contributions of these two extraordinary
individuals to the field of research ethics.
Although they have already been recognized
in many ways and places, PRIM&R is honored
to bestow its highest award on Drs. Faden
and Beauchamp for their outstanding and
sustained efforts, both collaboratively and
individually, to advance the ethical conduct of
medicine and research.
In addition to their remarkable scholarship
and leadership, both Drs. Faden and Beauchamp
are legendary for their kindness, graciousness,
and generosity to their students and colleagues.
They truly walk the talk when it comes to ethics,
and PRIM&R has been among their grateful
beneficiaries. By permitting us to honor them,
they honor us, and we are grateful for and
privileged by their presence here today.
Congratulations to Gigi McMillan for receiving the ARENA Legacy Award!
The ARENA Legacy Award recognizes a PRIM&R
member who has made an exemplary contribution
to the mission and goals of PRIM&R by significantly
promoting the ethical conduct of research through
mentoring, teaching, and leadership.
This award has been developed to honor not
only the recipient, but also the living legacy
created by the Applied Research Ethics National
Association (ARENA), which was the membership
division of PRIM&R from 1986 to 2005.
Gigi McMillan has been selected as the 2011
recipient of the ARENA Legacy Award. As noted in the award nomination submitted
by a PRIM&R member: “Gigi has been a faculty member with PRIM&R
since 2004. In that year she stunned us with
her keynote address, riveting the audience by
sharing her personal experiences as a parent
of a son who had been enrolled in several
clinical trials. Her description of the consent
process changed what would have otherwise
been a detached and boring concept in a text
book to an intense, emotional experience; one
that I will personally never forget.”
That testimonial only begins to tell the tale
of Ms. McMillan’s significant and innumerable
contributions to the PRIM&R community. We’ve
heard similar statements of gratitude from many
other conference attendees.As reflected above, Ms. McMillan has been a
valued PRIM&R faculty member. All those who
have been in her presence have benefited from
her unique perspective, which has been informed
by her legendary advocacy for pediatric research
subjects and their families.
Ms. McMillan has also been an active PRIM&R
member far beyond our conference corridors,
serving on the Workshop/Didactic Session Sub-
Committee that is responsible for developing all
of the Advancing Ethical Research Conference
breakout sessions. She also created and co-led
the community member track for unaffiliated,
nonscientific IRB members; co-created a short
course for community members which is now
part of PRIM&R’s regular educational offerings; and
has served as a speaker on PRIM&R’s webinars.
In short, Gigi has always stepped up to teach and
mentor whenever she has been asked to do so.
Ms. McMillan is the co-founder of We Can,
Pediatric Brain Tumor Network, a nonprofit
organization that reaches out to families of
children with brain cancer. She has served as the
executive director of We Can for 10 years and seen
firsthand the importance of providing emotional
support to children and families.
The author of many book chapters, articles and
pamphlets, Ms. McMillan’s publications include:
“The Importance of the Nonscientific, Unaffiliated
(Community) Member” (Community-Campus
Partnerships for Health and the Tuskegee Center
for Bioethics in Research and Health Care, A Case
Story Collaborative Journal, October 2007); “Clinical
Research: The Parent’s Dilemma” (The Monitor,
April 2006); “What do Researchers Say? What
do Subjects Hear?” (Protecting Human Subjects,
Spring 2005); and “Childhood Brain & Spinal Cord
Tumors: A Guide for Families, Friends & Caregivers,”
(with T. Shiminski-Maher, et al. in Patient-Centered
Guides, 2002).
Ms. McMillan earned a bachelor’s degree in
history with minors in German and business at
Loyola Marymount University. She has four children,
one of whom is a brain tumor survivor/”thriver.”
Beyond her innumerable professional
achievements, Ms. McMillan is a joy to know
and work with. She is spirited, warm, articulate,
well-organized, and always helpful. As noted
above, she has enlightened all who have been
fortunate enough to have been in one of the many
conference sessions and/or courses she has led for
PRIM&R by sharing her invaluable perspectives on
the key issues facing research subjects and their
families. Her very being reflects the name of the
organization she leads, i.e “We Can.”
With her continued participation, the PRIM&R
community can and will continue to identify and
address the needs of research subjects who make
scientific advancement possible. Ms. McMillan is a
true standard bearer of ARENA’s important legacy.
We are therefore honored to be a beneficiary of
her principled wisdom, and proud to present her
with the ARENA Legacy Award.
Congratulations to Ivor Pritchard for receiving the Distinguished Service Award!
Ivor Pritchard has been selected as the 2011
recipient of the Distinguished Service Award.
As noted by one of those who nominated
Dr. Pritchard:
The Distinguished Service Award recognizes a
PRIM&R member who has made a valuable and
unique contribution to the field of research ethics,
and who has attained distinction in promoting
PRIM&R’s purpose and ideals through writing,
teaching, or research.
“Ivor is a sought-after speaker and has graced
more conference podiums than can be named
or even remembered. He is known not only
for his keen intelligence, bone-deep principles
and integrity, and prodigious work ethic, but
also for his wry and warming sense of humor
and his amazing talent as a folk guitarist and
harmonica virtuoso. Dr. Pritchard is the closest
thing the research ethics field has to a rock star,
and he has written and performed songs at
several conferences over the past 10+ years.”
This passage is one of many similar
testaments to just how fortunate the entire
PRIM&R community is to have the multi-talented
Dr. Pritchard as a partner in the weighty and
complex work of human subjects protections. He
possesses a wealth of knowledge about research
ethics, moral and civic education research and
practice, and educational policy, and, as noted
in the above excerpt, is a constant source of
entertainment as well as insight and information.
Dr. Pritchard has generously and graciously
shared his time by being a PRIM&R faculty
member since 1995. He has also co-chaired the
conference planning committee for the Advancing
Ethical Research Conference for the past two
years, taught at several of the pre-conference
programs, and served as a speed mentor.
Dr. Pritchard has worked tirelessly in the field of
research ethics at the national level for 25 years. In
1986, he joined the US Department of Education’s
Institute for Education Sciences, a department for
which he would serve as a senior research analyst
until 2004. That same year he transitioned to the
Office for Human Research Protections (OHRP) as
a senior fellow. He is currently the senior advisor
to the director of OHRP, where his responsibilities
include advising the director, developing policies
and guidance documents, and representing OHRP
at the national meetings focused on the protection
of human subjects in research.
Dr. Pritchard is a widely published author and
has written dozens of articles on human subjects
protections including, “Searching for ‘Research
Involving Human Subjects:’ What is Examined?
What is Exempt? What is Exasperating?” (IRB: Ethics
& Human Research, 2001); “Travelers and Trolls:
Practitioner Research and Institutional Review
Boards” (Educational Researcher, 2002); “Ethical
Standards of the American Educational Research
Association: Cases and Commentary” (Strike et.
al., 2002); “Students as Research Subjects” (with
Koski, in The Encyclopedia of Bioethics, 2004); and
“Power, Truth and Justice in Youth Participatory Action Research: Ethical Questions” (Practicing
Anthropology: A Career-Oriented Publication of the
Society for Applied Anthropology, 2004). He is also
the author of a book titled, Good Education: The
Virtues of Learning (1998).
Dr. Pritchard earned a bachelor’s degree in
philosophy at Haverford College (with honors in
philosophy) and a master’s degree and a PhD in
philosophy from Boston University.
Beyond his academic and professional
achievements, though, we often refer to Dr. Pritchard
as one who was born with ethics in his DNA, or
at least in his environment, as his mother, Marion
Pritchard, rescued hundreds of Dutch Jews, mostly
children, as a member of the resistance during
World War II. As a reward for her actions during
the Holocaust, Marion Pritchard was awarded the
Wallenberg Medal in 1992. She is listed as one of the
“Righteous Gentiles” at Yad Vashem, the Holocaust
Memorial in Jerusalem. She is alive and well after a
life dedicated to social services, Holocaust education,
and tending to a large and close family, and Ivor is an
“apple” who has not fallen far from her “tree.”
With this type of moral grounding, it is not
difficult to see how it was that Pritchard came to
be committed to working for human rights and
dignity. He is a subjects protection champion, and
has been consistently generous with his limited
time and many talents each time PRIM&R has
come to call. It is thus with enormous gratitude
for his service to both PRM&R and our community
at large that we present the 2011 Distinguished
Service Award to Dr. Pritchard.