Keynote Speakers

Friday, December 5

John WilbanksJohn T. Wilbanks 
Chief Commons Officer, Sage Bionetworks

John T. Wilbanks is the chief commons officer at Sage Bionetworks, and he works to promote the use of technology to pool medical data, creating a commons where information is integrated and accessible. Mr. Wilbanks is also a Senior Fellow at Faster Cures and Founder at Consent to Research. He co-founded the Access to Research campaign, which resulted in increased accessibility to results of federally funded scientific research, and he started a bioinformatics company called Incellico, which became a part of Selventa in 2003. Mr. Wilbanks serves on the board of directors for Impact Story and the tranSMART Foundation, as well as on the advisory boards for Boundless Learning, Curious, GenoSpace, and Patients Like Me. Mr. Wilbanks served as a senior fellow at the Ewing Marion Kauffman Foundation, was a senior advisor for big data to the National Coordination Office, and has past affiliations with Massachusetts Institute of Technology’s Project on Mathematics and Computation, which hosts Creative Commons, a nonprofit organization that enables knowledge sharing through free legal tools. Mr. Wilbanks worked with Harvard University’s Berkman Center for Internet & Society, the World Wide Web Consortium, the US House of Representatives, and Creative Commons. He has numerous publications on data sharing, and a chapter titled "I Have Seen the Paradigm Shift, And It Is Us," in The Fourth Paradigm: Data-Intensive Scientific Discovery (Microsoft Research, 2009). Mr. Wilbanks received a BA in philosophy from Tulane University and studied modern letters at the Sorbonne.

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Saturday, December 6

Anthony FauciAnthony S. Fauci, MD
Director, National Institute of Allergy and Infectious Diseases, NIH

Anthony S. Fauci, MD, is director of the National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health. Since his appointment as NIAID director in 1984, Dr. Fauci has overseen an extensive research portfolio devoted to preventing, diagnosing, and treating infectious and immune-mediated diseases.  Dr. Fauci also is chief of the NIAID Laboratory of Immunoregulation, where he has made numerous important discoveries related to HIV/AIDS and is one of the most-cited scientists in the field.  Dr. Fauci serves as one of the key advisors to the White House and Department of Health and Human Services on global AIDS issues, and on initiatives to bolster medical and public health preparedness against emerging infectious disease threats such as pandemic influenza. He was one of the principal architects of the President’s Emergency Plan for AIDS Relief (PEPFAR), which has already been responsible for saving millions of lives throughout the developing world.

Dr. Fauci is a member of the US National Academy of Sciences and is the recipient of numerous prestigious awards for his scientific and global health accomplishments, including the National Medal of Science, the Mary Woodard Lasker Award for Public Service, and the Presidential Medal of Freedom.  He has been awarded 38 honorary doctoral degrees and is the author, coauthor, or editor of more than 1,200 scientific publications, including several major textbooks.

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Sunday, December 7

Susan LedererSusan E. Lederer, PhD 
Robert Turell Professor of the History of Medicine and Bioethics, University of Wisconsin School of Medicine and Public Health

Susan E. Lederer, PhD is the Robert Turell Professor of the History of Medicine and Bioethics at the University of Wisconsin School of Medicine and Public Health. In January 2008, she was appointed chair of the department of medical history and bioethics. A historian of medicine and biomedical ethics, Professor Lederer received her doctorate in the history of science and medicine at the University of Wisconsin Madison.  Before coming to the University of Wisconsin, Professor Lederer taught in the department of humanities at the Pennsylvania State University College of Medicine, and in the section of medical history at Yale University School of Medicine. She has published extensively on the history of both human and animal experimentation. In 1994, she was appointed by President Clinton to the Advisory Committee on Human Radiation Experiments, and contributed to the Committee’s lengthy report on the radiation research sponsored by the federal government in the years between 1944 and 1974. She has also served on presidential commissions for the German government that were charged with exploring the conduct of human experimentation during the period of National Socialism. Professor Lederer’s books include Subjected to Science: Human Experimentation in America Before the Second World War (Johns Hopkins University Press, 1995); Frankenstein: Penetrating the Secrets of Nature (Rutgers University Press, 2002), and Flesh and Blood: A Cultural History of Transplantation and Transfusion in Twentieth-Century America (Oxford University Press, 2008).  

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