Webinar Bundle: Research with Minority and Vulnerable Populations

Overview

PRIM&R has developed and presented over 100 webinars, offering convenient, affordable, in-depth analysis on a range of important topics for professionals in the research ethics field.

The Research with Minority and Vulnerable Populations webinar bundle is made up of a curated selection of high-quality, on-demand recorded webinars. Developed and presented by experts, the webinars in this bundle offer insight into some of the fundamental concepts and considerations associated with including minority and vulnerable populations in research. Webinar topics include lessons learned from selected cases of research abuse, what it means to be vulnerable and which populations are considered vulnerable, and the critical role tribal review plays in research with American Indians and Alaska Natives (AI/AN).

This webinar bundle may be accessed by individual PRIM&R members for $0 in the online store. Nonmembers may purchase the bundle in the online store. Groups who would like to purchase the bundle should complete the order form. The webinars included in this bundle are also available for purchase individually.

Continuing Education

CIP Credit labelWebinar viewers holding the Certified IRB Professional (CIP®) credential may apply 1-1.5 continuing education credits from each webinar towards CIP recertification. This webinar bundle is eligible for a total of 8.5 continuing education credits. Learn More »

Webinars

Please see below for descriptions and learning objectives of each webinar in this bundle.

Distrust, Race, and Research: Overcoming Barriers to Recruitment and Retention of Minority Populations

On-Demand Webinar Recording, 2010

Speakers: Stephen B. Thomas, PhD and Sandra Crouse Quinn, PhD

This webinar addresses historical and contemporary barriers to involvement of minorities in research. The primary goal of this webinar is to provide solutions that are culturally relevant and scientifically sound.

Topics include:

  • Lessons learned from selected cases of research abuse involving racial and ethnic minority populations
  • Background and context of the U.S. Public Health Service Syphilis Study at Tuskegee, the subsequent presidential apology, and NIH supported research initiatives designed to repair the damage caused by this study
  • The National Bioethics Research Infrastructure Initiative: Building Trust Between Minorities and Researchers
  • Preliminary data from a qualitative study of investigators, as well as survey data from institutional review board (IRB) members, IRB staff, and researchers
  • A new conceptual model of the research continuum that serves as a viable framework for designing, implementing, and evaluating measures that aim to overcome barriers to minority recruitment

Participation in this 90-minute webinar counts as 1.5 CE credit hours.

Purchase Distrust, Race, and Research: Overcoming Barriers to Recruitment and Retention of Minority Populations webinar recording only.

Lessons from Researchers: Best Practices for Respectful Engagement with Minority Communities

On-Demand Webinar Recording, 2011

Speakers: Stephen B. Thomas, PhD and Sandra Crouse Quinn, PhD

Building Trust between Minorities and Researchers is a federally funded initiative based at the University of Maryland’s Center for Health Equity. The goal of this initiative is to develop, implement, and evaluate strategies aimed at increasing minority participation in biomedical and public health research. PRIM&R partnered with the research team to facilitate the development and presentation of educational programs that improve research literacy for and respectful engagement with minority communities. The second webinar in a three-part series, Lessons from Researchers: Best Practices for Respectful Engagement with Minority Communities presents the findings from an in-depth and unique survey and interviews of researchers, research staff and IRB members and staff.

Topics for discussion include:

  • Researchers’ attitudes toward community engagement
  • Challenges in building community partnerships
  • Best practices for community partnerships
  • Impact of community engagement on recruitment and retention

Participation in this 90-minute webinar counts as 1.5 CE credit hours.

Purchase Lessons from Researchers: Best Practices for Respectful Engagement with Minority Communities webinar recording only.

No More Excuses: Building Trust and Capacity through the Bioethics Research Infrastructure Initiative

On-Demand Webinar Recording, 2011

Speakers: Stephen B. Thomas, PhD and Sandra Crouse Quinn, PhD

Building Trust Between Minorities and Researchers is a federally funded initiative based at the University of Maryland’s Center for Health Equity. The goal of this initiative is to develop, implement and evaluate strategies aimed at increasing minority participation in biomedical and public health research. PRIM&R partnered with the research team to facilitate the development and presentation of educational programs that improve research literacy for and respectful engagement with minority communities.

No More Excuses: Building Trust and Capacity through the Bioethics Research Infrastructure Initiative is the third webinar in a three-part series that introduced two curriculum products, one aimed at minority communities for the general public and one at researchers, research staff and institutional review board members and staff.

Participation in this 90-minute webinar counts as 1.5 CE credit hours.

Purchase No More Excuses: Building Trust and Capacity through the Bioethics Research Infrastructure Initiative webinar recording only.

Preserving a Role for Tribal Review of Research in the Context of Single IRB Policies

On-Demand Webinar Recording, 2016

Speakers: Daniel J. Calac, MD, FAAP, Malia Villegas, EdD, EdM, Sara Chandros Hull, PhD, Valery Gordon, PhD, MPH, and Ivor Pritchard, PhD

This complimentary webinar, developed in collaboration with Northwest Indian College, aims to reinforce the vital role local review plays in AI/AN research. Using case studies, speakers will cover the following:

  • The historical and ethical foundations for tribally based review
  • Models and mechanisms for review that are unique to tribes, and how they currently fit into multisite research with AI/AN tribal populations
  • The final NIH policy and NPRM single IRB mandates, and comments and concerns related to the potential impact of these policies on AI/AN research
  • Considerations for future guidance regarding operationalization of the exceptions clause in this new regulatory landscape

Participation in this 90-minute webinar counts as 1.5 CE credit hours.

Purchase Preserving a Role for Tribal Review of Research in the Context of Single IRB Policies webinar recording only.

Research Ethics Beyond Respect, Beneficence and Justice

On-Demand Webinar Recording, 2012

Speakers: Elisa A. Hurley, PhD

Most human research protections professionals are familiar with the ethical principles of respect, beneficence, and justice as laid out in the Belmont Report and as codified in the US federal regulations governing research with human subjects. However, the domain of research ethics encompasses much more than these three principles, and engaging directly with the other important concepts can help research ethics professionals better understand and more thoughtfully fulfill their roles. This webinar looked beyond the Belmont principles to explore some of the additional ethical questions and concepts that come into play during the protocol review process, but are not well delineated or defined in the regulations.

This webinar looked beyond the Belmont principles to explore some of the additional ethical questions and concepts that come into play during the protocol review process, but are not well delineated or defined in the regulations. More specifically, we explored why research with human subjects raises special, though not necessarily unique, ethical questions, as well as discuss the difference between ethics and compliance and why it is useful for those who review research to engage with ethical questions and concepts directly. Additional topics for discussion include:

  • Informed Consent: The role of voluntariness, disclosure, and comprehension in genuinely informed consent, and how the requirement for informed consent embodies respect for persons
  • Undue influence: What constitutes undue influence, why it is a concern, and how it is distinct from coercion
  • Vulnerability: What it means to be vulnerable, which populations are considered vulnerable and why, and the ethically important differences between types of vulnerability

Participation in this 60-minute webinar counts as 1 CE credit hour.

Purchase Research Ethics Beyond Respect, Beneficence and Justice webinar recording only.

Research Involving "Edge" Populations: Ethical and Regulatory Considerations

On-Demand Webinar Recording, 2012

Speakers: Cynthia A. Gómez , PhD and Julia Gorey, JD

There are many ethical considerations for research studies involving “edge” populations, and this program provided an investigator perspective as well as the regulatory angle on research with subjects who are homeless, substance abusers, and/or HIV-positive. Cynthia Gómez, PhD, discussed a multi-site study with HIV-positive participants and the work of the research team to ensure protection and sensitivity to issues. This webinar focused on the investigator’s responsibility in the design and conduct of a study involving “edge” populations, including:

  • Applying certain protocols from recruitment to engagement of "edge" populations
  • Ensuring informed consent and confidentiality, including the need for certificates of confidentiality (CoCs)
  • Maintaining contact and following up with research subjects
  • Special considerations to be addressed by study teams when designing a study and by institutional review boards (IRBs) when reviewing these studies, such as payment and undue influence.
  • Options for handling institutional engagement
  • Recruitment issues
  • Informed consent and confidentiality issues
  • An overview of protections for research involving prisoners, 45 CFR 46 Subpart C

Participation in this 90-minute webinar counts as 1.5 CE credit hours.

Purchase Research Involving "Edge" Populations: Ethical and Regulatory Considerations webinar recording only.

Fees

Individual members may access these complimentary bundles for $0 in the online store. Nonmembers can purchase the bundle or an individual webinar in the online store. Members and nonmembers looking to purchase a group registration should complete the order form. Not a PRIM&R member? Join online now!

Webinar Individual Member Fee Group Member Fee Individual Nonmember Fee Group Nonmember Fee
Distrust, Race, and Research: Overcoming Barriers to Recruitment and Retention of Minority Populations $0 $325 $175 $375
Lessons from Researchers: Best Practices for Respectful Engagement with Minority Communities $0 $300 $175 $375
No More Excuses: Building Trust and Capacity through the Bioethics Research Infrastructure Initiative $0 $300 $175 $375
Preserving a Role for Tribal Review of Research in the Context of Single IRB Policies $0 $0 $0 $0
Research Ethics Beyond Respect, Beneficence and Justice $0 $325 $175 $400
Research Involving "Edge" Populations: Ethical and Regulatory Considerations $0 $325 $175 $400
Totals $0
Purchase Online
$1,550
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$875
Purchase Online
$1,925
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